“#ChronicIllness is unpredictable. One day you’ll be thinking, “I can handle it” then bam. The next…find yourself bed-bound as the weeks fly by, wondering if it will ever let up… Now… I give myself compassion—I am doing my absolute best—and that is OK.”
When I Can't Control How Chronic Illness Is Affecting My Body
When this writer can't control how her illness is affecting her body, this is how she chooses to survive life with chronic illness.
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“The cost of having a chronic illness can be enormous… This is exacerbated if the person with chronic illness is unable to work to cover these costs.” Guilt & #ChronicIllness: How to Deal (or Help Someone Dealing) with Guilt https://buff.ly/2XnnpgV @girlinhealing #ChronicPain
“As my body rages against itself, my brain becomes confused, tired and easily distracted… It’s hard to think of anything but pain and ways to relieve it.” The Levels of #Fibromyalgia #BrainFog #chronicillness #chronicpain
The Levels of Fibromyalgia Brain Fog
Living with fibromyalgia, this writer has discovered the levels of brain fog she's most likely to experience.
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“Sometimes symptoms of a #chronicillness such as #fatigue, nausea or #vertigo can be so severe that they quite literally are debilitating. But you can't see these things… It's invisible to you unless you are the one feeling it.” #invisibleillness #spoonie
My Chronic Illness Might Be Invisible But It Is Real
There are a lot of chronic illnesses, more than I could name. Which is quite unfortunate, but life would just ...
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“People don’t understand the amount of energy that goes into preparing to leave the house… You have to calculate your every move to ensure you don’t overdo it. Even still, you could have an awful flare-up.” #NERVEmber #chronicpain #invisibleillness
18 Hidden Parts of Chronic Illness You Don't Usually See
The Mighty community shares the hidden aspects of their lives with chronic illness other people don't usually see.
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“To live with #ChronicIllness is to live with a heightened sense of uncertainty. We do not know when our symptoms will flare, if and when our illness will worsen… Even from day to day, we do not know how we will feel.” #NERVEmber #ChronicPain
Chronic Illness and Uncertainty
Why uncertainty is so challenging and strategic ways to address it.
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“I do not hide my illness, but I do hide how it has made me feel emotionally. I’ve cried a lot of tears behind closed doors. I keep the information I share basic because I do not want to be seen as an attention-seeker.” #NERVEmber #chronicillness
30 Ways People Hide Their Chronic Illness
The Mighty community shares ways in which they hide the symptoms of their chronic illnesses.
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“What I need you to know when I don’t reply is that I still love you. I still care even when I’m absent. I think of you often and wish I had the energy left at the end of the day to pick up the phone.” When I Don’t Reply #CRPSAwarenessMonth #chronicillness
What I Need You to Know When I Don't Reply | Chronic Illness Truths
None of us can pour from an empty cup, and yet so often we keep trying to pour long after we are empty. ...
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“Life as a #chronicallyill person can make you do things like push your limitations…because you desperately want to make the most out of those rare times when you aren’t lying in bed all day… [even if] it means needing two days to recover.” #NERVEmber
33 Unfortunate Realities of Life With Chronic Pain and Illness
The unfortunate but true realities of living with chronic illness.
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“I'm not angry, either. I should be, but I'm not. I just feel pain. A lot of pain. I thought could imagine how much this would hurt, but I was wrong.” ~ Haruki Murakami
#CRPSAwarenessMonth #NERVEmber #ChronicPain #RareDisease
“I’m astonished by the fact I look at my feet and there are no flames… Not only does touch hurt but so do other things… vibrations from music hurt… Mix that with the amplified effect even light touch has—it’s very hard.” #CRPSAwarenessMonth #NERVEmber
What I Wish I Had Known About Complex Regional Pain Syndrome Flare-Ups
Here are four things this writer wishes she had been told about chronic regional pain syndrome flare-ups after being diagnosed.
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“I have two major triggers for #flares. One is activity. If I do too much…I can count on a flare hitting within 48 hours. My second trigger…#stress. When I’m #stressed, flares hit much quicker and equally as hard as activity-related flares do.” @AChVoice
A Roundup of Biggest Pain Flare Triggers (from 40 People with Chronic Illness)
Check out this 3-part series all about pain flares. This is part 1, where people with chronic pain share more about their pain flare triggers.
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“It’s really tough when other people don’t understand what you’re going through. It’s especially hard when it comes to loved ones… you’ve tried to explain… but they just don’t quite get it. This can feel really isolating and frustrating.” #ChronicIllness
The 6 Hardest Things About Living With Fibromyalgia (and How I Cope With Them)
A woman with fibromyalgia explains what she finds most challenging about living with this chronic pain condition, al...
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“#ChronicPain can be so invasive that it splinters lives and causes cracks in our #MentalHealth… The stark contrast between how our lives used to be or could have been, compared to what they are now…can be incredibly hard to accept.” @InvisiblyMeBlog
Chronic Pain & Mental Health : 5 Detrimental Effects
Chronic pain & mental health are intricately interwoven. Here are just 5 ways life with pain can detrimentally affect our mental wellbeing.
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“I try very hard to hide the pain… I don’t want to make anyone else miserable… so they don’t see the tears… the medications… They don’t see the days in bed it takes to recover from a few hours of pretending to be ‘normal’.” #NERVEmber #ChronicPain
Today I'm Facing What My Illness Took From Me
A woman faces how her life has changed since chronic illness took over her life.
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“There is still a part of me that wants to push through, to pretend I can manage what I had planned and refuse to let my symptoms dictate my day… The acceptance can feel like a loss. But it can also be an act of #kindness towards myself.” https://buff.ly/x6hwpg4 #ChronicIllness
“Having multiple illnesses is a full-time job—you never get a break or vacation. You can spend every waking minute managing #chronicillness(es), staying on top of them…but in the end it catches up with you because it’s so exhausting… It never stops.”
The 21 Worst Parts of Having Multiple Chronic Illnesses
The Mighty's chronic illness community shares 21 of the most frustrating aspects of living with multiple health conditions.
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“When poorly treated or left untreated #ChronicPain has profound negative and deleterious effects on the cardiovascular and endocrine systems. Pain puts the cardiovascular system into overdrive, which raises blood pressure and pulse rates.” #opioidhysteria
The Strange Denial of Complications Caused by Poorly Treated Pain — Pain News Network
By Drs. Forest Tennant and Scott Guess There has been no shortage of controversy, scandal and fraud regarding the ...
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“Please don’t punish us for something we have zero control over. And learn to listen to us, and hear what may be underneath our “it’s OK.” That means more than anything.” To People Who Think #ChronicPain 'Can't Be That Bad' #InvisibleIllness #NERVEmber
To the Person Who Thinks Chronic Pain 'Can't Be That Bad'
A letter to people who don't understand chronic pain and think it's "not that bad."
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“It changes your life. It is not ‘just’ back pain or neck pain, it is the spine. The spine carries nerves which carry messages throughout the body. When damaged, it affects everything.” 21 Truths People With Chronic #SpinePain Want You to Know https://buff.ly/bKjIzMN #ChronicPain
“It feels like millions of little needles hitting my skin… Showering is so painful all over. Water stings, reaching around to wash my skin hurts, it’s exhausting and I have to rest afterwords.” https://buff.ly/1uFG8zT #NERVEmber #ChronicPain #ChronicallyIll
“It’s so exhausting keeping up the mask that hides the pain. And sometimes, it’s too much… Whatever the reason or the type of ‘too much’…it is okay to cry! Sometimes you just have to call it a day and hope things are better tomorrow.” https://buff.ly/qbSvn5T #ChronicPain
“Not only do we experience pain and #fatigue more often than most, but we’re frequently running on just a few hours’ sleep as a result of the beast we call #painsomnia.” Inside the Mind of Someone Kept Up at Night by #ChronicPain #NERVEmber #FreezingFire
Inside the Mind of Someone Kept Up at Night by Chronic Pain
A woman describes what it’s like to be kept up at night by chronic pain.
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