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“We who suffer from #ChronicPain know that it is a disability. Invisible and destructive. We live in the knowledge that pain is disabling. We just wish doctors were as aware of the ongoing relentless #disability called pain.” https://buff.ly/39kwr9J #NERVEmber #InvisibleIllness
“With #CRPS our nervous systems are in overdrive—malfunctioning 24/7. The pain is so intense & new symptoms are popping up… The #stress & #anxiety revs up our nervous systems even more which causes even more #pain—a vicious cycle.” #CRPSAwarenessMonth
6 Things I Would Tell Myself When I Was First Diagnosed With CRPS/RSD
Melissa Wardlaw shares what she would have told herself when she was first diagnosed with CRPS/RSD.
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“Simple pleasures can help alleviate suffering, whether it's watching a #comedy, using your favorite tea cup, being in #nature, with #animals or listening to #music… Whatever works for you.” Body Betrayal—How to Cope with #ChronicPain and Illness #spoonie
Body Betrayal: How to Cope with Chronic Pain and Illness
When dealing with chronic pain or illness, we can choose our attitude toward it. Here are 7 thing I've learned ...
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“Please understand my #pain can be severe without being on the floor screaming… I have learned to hide my pain visibly to get by every day.” 19 Things People With #ChronicPain Wish Their Doctors Knew #NERVEmber #NervePainAwarenessMonth
19 Things People With Chronic Pain Wish Their Doctors Knew
What people with chronic pain wish their doctors knew about their lives.
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“Communication is tricky even in perfect conditions, so it is hard to be aware of the chasm #chronicillness creates between a life where your health is an after thought and one in which health dictates everything… Also, try not to take it personally.”
You Keep Using That Word. I Do Not Think it Means What You Think it Means
Chronic pain and illness sufferers live in a different world from those who are healthy. As with anything in l...
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“In all my years as a doctor treating patients with #chronicillness, I never saw a patient who enjoyed feeling ill. I saw the opposite, patients who were once very active, desperately trying to find answers and treatment for their overwhelming symptoms.”
I'm a Doctor With Chronic Illness. Here Are 12 Things I Wish People Knew.
A doctor who has chronic illness and treats patients with chronic illnesses shares what she wishes others knew.
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“If they suffer from #chronicpain, they’re in pain all of the time. As we in the #chronicillness community like to point out: “Chronic means chronic.” In my case, I’m never symptom-free. Even on a “good” day…and slowly deteriorate as the day progresses." https://buff.ly/2PDJl4q
“‘But you look fine.’ You can’t see the pain, the struggle I have to do the easiest of tasks… What you see is me trying my best with a smile… That doesn’t mean the pain isn’t debilitating and having a huge impact on my life.” #ChronicIllness #ChronicPain
18 'Harmless' Comments That Actually Hurt People With Chronic Pain
The Mighty community shares the "harmless" comments they've heard about their chronic pain that were actually hurtful.
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“To anyone who’s sick or otherwise, and feels like today is not a good day. Who is feeling beaten, broken, sore, down or defeated… Hang in there. I and many others are thinking of you, rooting for you and wishing you well.” http://buff.ly/uFAK0jv @AChVoice #MentalHealthMatters
“Days fade and bleed into one another. Minutes begin to feel like hours, hours like days, days seem like weeks, and weeks…like years…with only one remaining constant—pain.” The Struggles I Face Every Day With #ChronicPain https://buff.ly/2onamMX #NERVEmber #invisibleillness
“Chronic illness has shrunk my world… flattening my day into cycles of symptoms, medications, appointments and recovery… But I’ve found that #hope and #chronicillness, two opposing forces in my life, can coexist.” https://buff.ly/5X8PKrb @serenebutterfly
“Don’t let it change your life more than it already has. Your #strength has been tested through this ruthless, challenging experience. But you faced the challenge and continued to live despite it all.” Ways to Find Light in the Darkness of #ChronicIllness
12 Ways to Find Light in the Darkness of Chronic Illness
In the midst of the darkness brought on by chronic illness, she was able to find some light. Here's how.
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“People with #chronicillness work damn hard to manage their health and feel as well as they can do. Claims of fakery are just another stab of hurt, on top of the hurt we feel about difficult conditions and all the symptoms we experience.” @throughfibrofog
5 Daily Challenges When You Live with Chronic Illness - Through The Fibro Fog
There are many daily challenges when you live with chronic illness. Here are just five of the activities that we encounter often.
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“Imagine knowing that when you get up in the morning the pain is still going to be there, and if you get out of bed it’s going to get worse. Pain is depressing and when you’re told to learn to live with it, it just closes the door.” #NERVEmber #ChronicPain
Handling the Emotional Fallout from Chronic Pain
It’s not just in our heads nor is it purely physical. “Imagine knowing that when you get up in the morning...
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“Sometimes, I forget to put myself first. I may stay up to talk to someone who is going through their own rough patch when my #fatigue and pain is begging me to take a break.” Things I Wish People Knew About #ChronicPain #NERVEmber #ChronicallyIll
10 Things I Wish People Knew About Living With Chronic Pain
Jocelyn Leo shares what she wishes others knew about living with chronic pain.
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“It’s so exhausting keeping up the mask that hides the pain. And sometimes, it’s too much… Whatever the reason or the type of ‘too much’…it is okay to cry! Sometimes you just have to call it a day and hope things are better tomorrow.” https://buff.ly/qbSvn5T #ChronicPain
“#CRPS—it’s more painful than unassisted childbirth or having a finger cut off. She’s in terrible pain…24 hrs/day… The disease affects her nervous system and because she didn’t get diagnosed/treated quickly…she likely has it for life.” #CRPSorangeday
‘Whatever happened to…?’ The shrinking circle of CRPS. Part 1.
(By Helen T) Let’s paint a picture. Not a literal one – a metaphorical one. You’re doing fairly well. Life...
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“Photos on Facebook show my life for what it is: inconsistent. Some days I am in my wheelchair and some without a mobility aid… When you do have good days, you take advantage of them.” #Disability #ChronicallyIll #ChronicPain
The Judgment People With Chronic Illness Face After Posting on Social Media
Why people who are chronically ill are often judged and questioned after they post on social media.
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“Having #ChronicPain is torture… You may be feeling [relatively] okay, when suddenly a blitzkrieg of pain invades. You have no control or defense, and have no choice but to wait it out, cowering under the covers waiting for it to pass.” @PainNewsNetwork
A Pained Life: Stop Torturing Us — Pain News Network
By Carol Levy For many chronic pain conditions, such as Complex Regional Pain Syndrome, trigeminal neuralgia and Ehl...
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“Life as a #chronicallyill person can make you do things like push your limitations… because you desperately want to make the most out of those rare times when you aren’t lying in bed all day… It means needing two days to recover from an activity.” https://buff.ly/6LnOjnq #cpp
“Contact someone in your life who won’t try to talk you out of how you feel. You don’t need a pep talk. You just need someone to say, “I’m sorry things are so hard right now” or similar.” #ChronicIllness #ChronicPain #NERVEmber #MentalHealthMatters
10 Strategies to Try When You’re Sick of Being Sick
After 15 years of chronic illness and writing a book titled "How to Be Sick," I still can feel sick of being sick.
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“Speaking. It hurts to bring my voice out loud enough for most people to hear. Even then, usually people misunderstand or can’t hear and I end up having to repeat it.” Things That Can Be Painful When You Have a #ChronicIllness #NERVEmber #ChronicPain
19 Unexpected Things That Can Be Painful When You Have a Chronic Illness
The Mighty's chronic illness community shares things that cause them pain that others might not expect to be painful.
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“#ChronicPain can be so invasive that it splinters lives and causes cracks in our #MentalHealth… The stark contrast between how our lives used to be or could have been, compared to what they are now…can be incredibly hard to accept.” https://buff.ly/ULLKCM2 @InvisiblyMeBlog