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“When you live with #chronicillness—all the thoughts, emotions, un-screamed screams…fear…worry rattle around inside you… Not feeling heard is a painful experience…the irony is when we get stuck in these—it can make it almost more difficult to connect.”
How I Finally Found My Voice With Chronic Illness
A woman with chronic illness describes how expressing her feelings and finding her voice has helped her cope with ...
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“Accept that your body is sick and…just because you’re sick does not mean that you’re not worthy of love—esp. from yourself. You deserve it. You really do… I only have a certain number of spoons—I don’t want to spend them hating myself.” @kmitchellauthor
6 Tips for How To Accept a Chronic Illness
So much about living with chronic illness is difficult. (Like, all of it.) But I personally think that the harde...
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“We make plans with the best intentions but when you’re living with a #chronicillness… and when those plans involve other people, the stress and guilt felt by having to tell them you don’t feel well enough to participate can be overwhelming.” https://buff.ly/3sPYXdA #ChronicPain
“It’s possible to have ‘better’ days where you can do more on some days than others… This doesn’t mean you’re suddenly cured or ‘not as ill as you make out’…a good day for me isn’t the same as for you.” @me_illness #chronicillness #chronicpain
Living with… Fibromyalgia
It’s a new week and therefore a new instalment in my ‘Living with…’ series, and this week we are talking...
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“Never in my life did I think that taking a shower would actually be hard. It’s an exhausting activity that usually requires me to sit or lie down for a while afterward to recover.” Challenging Daily Decisions With #ChronicIllness #ChronicPain #Spoonie
7 Challenging Daily Decisions When You Live With Chronic Illness
"I have to put serious consideration into much of what I choose to do because it will have an immediate effect...
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“When #depression hits… Instead of mercilessly judging…I try to show myself kindness… You are worthy of love and #compassion… You carry a heavy burden, you are not a burden, and you haven’t done anything wrong.” @JourneyFog #mentalhealthmatters
10 Tips To Get You Through Bad Mental Health Days - A Journey Through the Fog
A Journey Through the Fog - I have personally suffered from depression and anxiety most my life. In fact I don...
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“I wish people understood that I’m not lazy… And if I do participate in a physical activity, I will ‘pay for it’ for days or possibly weeks with additional pain and exhaustion… When I say I can’t, I really can’t.” #Disabilities #ChronicIllness
22 Things People Who Can’t Lose Weight Due to Illness Want You to Know
It can be hard to lose weight when you live with chronic illness. These reasons show what it's like for someon...
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“Overdoing it. Walking too much. Doing too much work around the house. I want to pace all the time, but sometimes my brain thinks ‘Hey we can do this’ and my body is like ‘What the…!'” #PainFlare Triggers @AChVoice #chronicillness #chronicpain
A Roundup of Biggest Pain Flare Triggers (from 40 People with Chronic Illness)
In this three part series we’ll be investigating pain flares: how it varies for each individual, what triggers t...
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“I was told for many years that my symptoms were ‘just stress’ and #anxiety… I have #LymeDisease/#MSIDS. I am now on #disability… I cannot help but feel failed by the medical community and truly believe my life would have had a different outcome.”
10 Ways People With Chronic Illness Experience Gaslighting
Gaslighting is a form of manipulation that can make people with chronic illness doubt their experience. Here are p...
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“Far from providing relief, the medical system can leave many with #ChronicPain worse off than they were before… The rigid health care system in the US often leaves pain #patients worse… It’s time for #clinicians to recenter respect and compassion.” #cpp
Modern Medicine Fails People With Chronic Pain
The rigid health care system in the US often leaves pain patients worse off. It's time for clinicians to recenter respect and compassion.
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“Think of the last time you got sick—did anyone ridicule you? Or sigh in exasperation that you were ill yet again? Those with invisible #disability—try to explain… Lost friendships from “flaking” too often can end up leaving some very lonely.” #spoonie
10 Privileges You May Not Realize You Have If You’re Able-Bodied
Think about the last time you got sick. Did anyone ridicule you for it? Did anyone sigh in exasperation that you were ill yet again?
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““Why is she parked in a #disability spot? She looks fine… She’s too young.” Most of the public is uneducated on how #pain and disease affect young people too. We're not faking an illness to get a close parking spot. We would much rather be able to walk.”
The Discrimination I Experience as a Young Person With Invisible Illness
A woman with complex regional pain syndrome (CRPS) describes the discrimination she faces as a young person with invisible illness.
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“I tell other people to pace themselves all the time but I need my husband to remind me! I get so engrossed in what I’m doing that I push my limits… then suffer. So I need to follow some very strict pacing rules and take regular breaks.” @DespitePainBlog
It's Important to Focus on Ourselves Sometimes
It's important to take time out of life sometimes to just focus on ourselves. It's not being selfish doing so. It's vital.
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“Before I became ill, I was very busy… Then it all changed. My world completely stopped… For the last 3 years, I have spent most of my days in my house, resting, chasing doctors and insurance… researching my diagnoses and…crashing.” #MECFS #LongCovid
When You're Stuck in the Middle of 'Sick' and 'Well'
A woman with myalgic encephalomyelitis/chronic fatigue syndrome explains how she balances feeling both sick and well.
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“The inconvenient truth is that #ChronicPain is never-ending…and when we receive unsolicited health advice on how to cope, it makes it even harder. #Patients who live with chronic pain live with #pain that endures…for months, years, decades…lifetimes.” https://buff.ly/3QMQ1yD
“When #chronicillness hit me, everything slowed way down. I found myself unable to do as much because of constant #pain or #fatigue… I struggled with feeling constant guilt about what I cannot do and having to say no…because my body cannot handle it.”
Why I'm Rejecting 'Hustle Culture' in My Life With Chronic Illness
Karianne explains how "hustle culture" harms people with a chronic illness.
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“Today’s nonmedical #opioid users are not yesterday’s #patients… The [CDC guidelines] on risks of opioid addiction & mortality among patients managed by clinicians is vastly over-hyped, scientifically unsupported & ethically inappropriate.” #opioids #cpp
Doctors Prescribing to Their Patients Did Not Create the US Opioid
The 2016 and 2022 CDC opioid prescribing guidelines were based on the assertion that doctor over-prescribing to pati...
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“Days fade and bleed into one another. Minutes begin to feel like hours, hours like days, days seem like weeks, and weeks… like years… with only one remaining constant—#pain.” The Struggles I Face Every Day With #ChronicPain #chronicillness
The Struggles I Face Every Day With Chronic Pain
Cassie Behrendt describes the immense pain and difficulty she experiences daily with fibromyalgia and myalgic encephalom...
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“Imagine having a successful career and happy life then you become #chronicallyill, not able to work…to function or do the things you used to. All taken in the blink of an eye… You grieve every day for the person you once were.” #ChronicPain #Spoonie
The Side Effects of Chronic Pain No One Talks About
Hidden side effects of chronic pain that aren't usually discussed.
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“#ChronicPain is difficult to treat…unfortunately, there are no magic solutions. But to tell #patients to learn to live with it, without giving them adequate help and support is unacceptable.” Is This The Best Advice From A Doctor?  @DespitePainBlog #cpp
"Learn to Live With the Pain" Is That Really the Best Advice From a Doctor?
Chronic pain is difficult to live with. We have to learn to live with the pain but we also need support, empathy and a treatment plan.
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“It’s really tough when other people don’t understand what you’re going through. It’s especially hard when it comes to loved ones when you’ve tried to explain… but they just don’t quite get it. This can feel really isolating and frustrating.” #chronicpain
The 6 Hardest Things About Living With Fibromyalgia (and How I Cope With Them)
A woman with fibromyalgia explains what she finds most challenging about living with this chronic pain condition, al...
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"In truth, every day is a fight, a constant battle, trying to keep that smile painted on our face. But often, the demands of #chronicillness supersede everything else, and this performance becomes difficult to sustain.” @serenebutterfly #NERVEmber #FND
What You Don't See About Living with FND
Living with a chronic invisible illness is both a blessing and a curse. I live with a condition called FND, wh...
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“The myth that doctors “overprescribing” prescription pain pills…led to the overdose crisis… Data from CDC and NSDUH reveal no correlation between the volume of painkiller prescriptions and non-medical use or addiction to prescription painkillers.” #cpp
Australian Study on Opioid Prescribing Is the Latest to Challenge the False Narrative about the...
It is easier to embrace a false narrative than to face the inconvenient truth.
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