“People with #chronicillness often don’t tell people when they are struggling. Because they are sick so often… Many times, you might notice they disappear for a time…this is when they are trying to manage their symptoms and are too sick to do much else.”
8 Extraordinary Things You Need to Know About People With Chronic Illness
What healthy and able-bodied people need to understand about life with chronic illness.
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“Situations involving external stimuli. Either too much light or noise. Sometimes various noises happening at the same time such as a conversation and the radio and/or television.” The Biggest #PainFlare Triggers @AChVoice #ChronicIllness #ChronicPain
A Roundup of Biggest Pain Flare Triggers (from 40 People with Chronic Illness)
In this three part series we’ll be investigating pain flares: how it varies for each individual, what triggers t...
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“I wish people understood being ill does not get easier with time. It gets harder… You may adjust to the physical pain, but you never truly adjust… You never get used to those around you saying, “Again? Weren’t you just in the hospital?”” #chronicillness
What I Wish People Knew About My Illness, Even When I Look Fine
Woman with chronic illness explains what she feels like when she looks fine.
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“#ChronicPain is awful to live with—it’s there all the time and really interferes with life. You get used to living with it to a certain degree, but when it steps up a gear, it can catch you off guard… If I don’t pace… I’m in trouble.” @DespitePainBlog
Pain Interferes With Your Life & There's No Magic Wand
Pain always interferes with life. It kind of becomes normal but sometimes the pain goes up a few notches and takes your breath away.
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“It’s not fair to have the same expectations from us as you would a healthy person… Think of a time you empathized with someone who was ill for a few days. Did you cut them some slack? Now imagine being sick for years—don’t you think we deserve the same?”
8 Things I Haven't Told My Family and Friends About Being Chronically Sick
A young woman living with chronic illness reveals what she's been longing to say to her family and friends about...
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“The #pain and other withdrawal symptoms from this forced taper are horrifying, and the pain I suffer is unrelenting…I have given up hope that I will ever receive the #painmanagement necessary to have some quality of life.” #opioids #opioidhysteria #cpp
We need new laws to protect people in pain
The CDC’s revised prescribing guidelines retain an anti-opioid bias and do nothing to reverse the harmful policies inspired by the 2016 version.
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“You are fighting a hard battle every single day… Life with #chronicillness is anything but easy. And truth be told… you probably don’t voice even a quarter of the #pain you’re actually feeling… I see you… I also see your courage.” #ChronicPain
To the Person Feeling Guilty for Venting About Their Illness
A message for anyone who feels bad about venting about their illness.
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“But it's also an extremely misleading answer, if not an outright lie. Because I am never fine, I never feel fine; my chronicillness's #symptoms ensure that. Therefore, I'm fine is a lie that #chronicillness makes me tell.” https://buff.ly/3Wzofan @serenebutterfly #chronicpain
“It’s a daily battle…and am not someone they can depend on anymore… My health is so very unreliable…to the point of being unable to even care for myself… I feel like I’ve let everyone down…It’s out of my control but it’s not out of my heart.” #spoonie
10 Ways Chronic Illness Makes You Feel Like a 'Bad Friend'
Sometimes living with a chronic health condition can make you feel like you aren't putting enough into your friend...
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“#Compassion—From saying something nourishing & supportive to ourselves, setting boundaries or—as I’m experiencing during a bad flare—giving myself mercy for the time I need to rest & stop worrying that I’m letting people down in the process.” @georgiexoxo
Chronic Illness and Mental Health - Georgie xoxo | Enchanted Living
The relationship between chronic illness and mental healthAccording to Paul Mayberry and a Metro Article on the subj...
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“#ChronicPain is difficult to treat… Unfortunately, there are no magic solutions. But to tell #patients to learn to live with it, without giving them adequate help and support is unacceptable.” Is This The Best Advice From A Doctor?  @DespitePainBlog
"Learn to Live With the Pain" Is That Really the Best Advice From a Doctor?
Chronic pain is difficult to live with. We have to learn to live with the pain but we also need support, empathy and a treatment plan.
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“There are millions of #chronicpain #patients suffering just like me because of the DEA. Nobody cares… They're not doctor shopping. They're not trying to escalate their dose. They're trying to function.” #opioidhysteria #opioid #cpp
This Couple Died by Suicide After the DEA Shut Down Their Pain Doctor
“There are millions of chronic pain patients suffering just like me," Danny Elliott wrote before ending his life. "Nobody cares."
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“Because chronic #intractablepain is constant, difficult to manage, incurable and usually severe, our bodies are constantly fighting it… This affects every part and piece of us…we have to fight back against every day… The #fatigue is debilitating.” #cpp
What It Means to Be 'Tired' With Chronic Pain
As someone with chronic pain, the writer describes what the extreme and debilitating fatigue she experiences looks like and feels like.
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“When people ask if I’m OK I always say yeah I’m fine when I’m far from fine. If I told the truth I don’t think people would understand and I hate feeling like I’m depressing people.” When Pain Is Your Normal #chronicpain #chronicillness #chroniclife
15 Things People Don't Realize You're Doing Because Pain Is Your Normal
The Mighty community shares things they do because pain is a normal part of their lives.
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“What matters is putting my reality out there because there is somebody who needs to read it to know that they aren’t alone. Because someone out there is feeling this way, too.” Life With #ChronicIllness #YouAreNotAlone #MentalHealthMatters #ChronicPain
Life With Chronic Illness – The Unfiltered Version
She's tired of sharing about her life with a filter covering the hard parts of her reality.
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"The human capacity for burden is like bamboo—far more flexible than you'd ever believe at first glance.” ~ Jodi Picoult
#MentalHealthMatters #MentalHealthAwarenessMonth #ChronicPain #DisabilityTwitter #ChronicIllness #Quote
“Living with chronic pain means pain #patients develop an incredibly high tolerance for #pain. Pain is not weakness. Pain means toughing it out day after day when you are feeling at your absolute worst.” 8 Ways #ChronicPain Changes You https://buff.ly/3q6F7cm @globetrotteri
“It’s 4 a.m. once again I’m unable to sleep… I am on fire…Intense, unrelenting burning pain is affecting all of my limbs… All I can do is wait, hoping the embers will dwindle to a low, more tolerable smolder.” #ChronicPain #Painsomnia
What It's Like Living With the 'Suicide Disease'
A woman with complex regional pain syndrome (CRPS), sometimes called "the suicide disease," describe what it feels like to live with.
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“When it’s understood that doctors are not the primary source of America’s #opioidcrisis much of current public policy on addiction, overdose and harm reduction is revealed to be either profoundly misdirected or outright fraudulent nonsense.” #opioids #cpp
The real cause of America's opioid crisis: Doctors are not to blame
Doctors are not to blame for the U.S. opioid crisis; new policy and law redirections are needed to address social determinants of health.
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“#ChronicPain is not something you get used to—you get used to the fact that you’re always in pain—but being used to it doesn’t dull any of it. Your tolerance might go up but only as your pain levels keep going up & you learn to act as normal as possible.”
27 Things Chronic Pain Is Not
The Mighty community shares what chronic pain is NOT to bust some of the most common misconceptions.
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“What I need you to know when I don’t reply is that I’m doing my best. I know it may not seem it…your message stays unread. Or worse—read but not responded to. I know you probably think that makes me rude but it’s simply as I have nothing left.” #spoonies
What I Need You to Know When I Don't Reply | Chronic Illness Truths
None of us can pour from an empty cup, and yet so often we keep trying to pour long after we are empty. ...
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“Having a #chronicillness is hard. Really hard. There’s no guidebook… There’s not even a guarantee you will get a #diagnosis when you go to the doctor.” When Friends Don't Understand Why Chronic Illness Makes You 'Flaky' #ChronicPain
When Friends Don't Understand Why Chronic Illness Makes You 'Flaky'
Dabria Draper describes how she lost a friend to chronic illness because the friend didn't understand why she was "flaky."
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“It represents the isolation and imprisonment those of us with #chronicpain+#chronicillness feel. We see and hear what the outside world is offering but we’re tied to our homes and diseases.” Living With Chronic Illness & #Pain by Judith Mary Rose https://buff.ly/3pyYevl #artwork