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“Our lives are very different from your lives… we also have to worry about #pain, #fatigue, nausea, #migraines, physical limitations, #brainfog, sleep difficulties, medications, appointments… canceled plans…trying to keep up with people’s expectations.”
8 Things I Haven't Told My Family and Friends About Being Chronically Sick
A young woman living with chronic illness reveals what she's been longing to say to her family and friends about...
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“Nobody knows what it takes for someone to get out of bed in the morning and function… Nobody fakes being unwell or #disabled… Be kind. Don’t be so quick to judge.” We Don’t Fake Being Sick, We Fake Being Well @OSufferer #ChronicIllness #ChronicPain
We don’t fake being sick we fake being well
The person you see on the left is the image you see when I’m in public. The person on the right is what ...
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“The public needs to believe people with #chronicillness… I see so many suffering deeply as their families/others think it’s not real… just because they can’t see it… They can’t possibly understand… but I wish more would try to empathise.” #chronicpain
21 Things That Seem Obvious About Chronic Illness, but the General Public Misunderstands
The Mighty's chronic illness community shares truths about illness that seem obvious, but aren't.
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“But the saddest part about it is that no one even knows they existed, although they mean so much to you. In their heads it’s just “she’s not into such activities”, yet if you could, you would be a star.” Grieving the Life That I Will Never Have @AChVoice
Grieving The Life That I Will Never Have
My psychologist tasked me with writing a diary entry, “Grieving the Life That I Will Never Have”, as a person with chronic illness and pain.
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“As someone who is #chronicallyill, I know how tough this life can truly become. I know the exact feeling of “my life wasn’t supposed to be this way.” I am all too familiar with missing out on so much… I hope you know that #YouAreNotAlone.” #ChronicPain
To the Person With Chronic Illness Who Feels Broken and Alone Today
Bianca Miranda reminds others with chronic illness that they are not alone and are strong and valuable.
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“Having a #chronicillness can impact so many aspects of your life other than your health. It can impact your relationships, your finances, your #selfesteem, and more. And that includes your #mentalhealth.” Chronic Illness and Mental Health @kmitchellauthor
Chronic Illness and Mental Health | Kate the (Almost) Great
Blogger & chronic illness patient Kate the (Almost) Great shares some data about chronic illness & mental health, ...
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“The truth is that this face has become a disguise for me. My disguise to hide the #pain and struggles of living with two chronic, incurable illnesses and my #mentalhealth illnesses.” What Hides Behind My Resting 'I’m OK' Face in Life With #ChronicIllness
What Hides Behind My Resting 'I’m OK' Face in Life With Chronic Illness
Lindsay Gilbert explains why she can appear happy while struggling deeply with the effects of life with chronic illness.
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“Rest before you think you need to. I’m still working on this! I’ll tell myself: “I can do just one more thing,” but that one more thing is often one too many… Then, when I finally lie down to rest, I’m too wired to benefit.” #chronicillness #chronicpain
22 Tips From 22 Years Sick
A Personal Perspective: I can’t overemphasize the importance of “pre-emptive rest.” It means resting before you think you need to.
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“‘I’m proud of you.’ Sometimes it is hard to be proud of yourself when it feels like you’re always failing, in ways big and small… ‘I’m proud of you for getting out of bed today… I’m proud of you for fighting through.’” #ChronicPain #ChronicIllness
12 Things People With Chronic Illness Wish Their Loved Ones Would Say More Often
The Mighty's chronic illness community shares 12 things they wish their loved ones would tell them more often.
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“The idea that ‘you will never recover’ is foreign to most people. When #chronicillness or pain wrecks you, you know that it will pass. This knowledge grants you some strength and comfort. But #ChronicPain has no beginning or end.” @AChVoice #disability
What Neverending Pain Reveals To You
Living with chronic neverending pain forces you to face your mortality on a frequent basis. You come to realise the fragility of being human.
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“I’m tired is code for: I’ve hit the exhaustion wall/power-off button; I don’t have the energy to explain the systemic overload my body and mind are experiencing; I need to be alone; I’m sorry.” What People With #ChronicIllness Mean When They Say I'm Tired
17 Things People With Chronic Illness Mean When They Say 'I'm Tired'
The Mighty community with chronic illness shares what they mean when they say "I'm tired."
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“Sometimes I have to take a rest and realise that’s okay. This is hard—but sometimes necessary. Those of us with #chronicpain [& #chronicillness] balance is key—part of that is taking care of ourselves and letting go of the guilt that comes along with it.”
Dealing with Fatigue, Frustration and Fear — Pain News Network
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“With #chronicpain we get pretty damn stoic about hiding our pain levels and functioning… we learn to tolerate a crapton of it… Intolerable levels, well, we’re at home curled in a ball and people don’t see that.” #chronicillness #invisibleillness
Telling people about your chronic illness
Facade This creator talks about a common thing that we all do. I call it the Facade of Well-being. She calls ...
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“Never assume a #ChronicPain patient is not experiencing pain when they say that they’re fine… Recall a time you were in pain, multiply the intensity and try to imagine that pain is 24/7—without any relief in sight.” @apainprincess #chronicillness
This is What Chronic Pain Sufferers Want You to Know
Elated that this post was published on The Mighty: What to Know to Understand the Experience of Having Chronic Pai...
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“We might work through grief and then we’re feeling better, maybe participating in things. But then all of a sudden you might flare and end up in the hospital and boom, you’re right back at the beginning of experiencing that grief again.” #chronicillness
How to Move Forward When You're Grieving Your Life Before Chronic Illness
The Mighty talks to Amanda Pratt, LCSW about how to cope with the grief that can accompany chronic illness.
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“#CRPS—it’s more painful than unassisted childbirth or having a finger cut off. She’s in terrible pain…it’s 24 hrs/day… The disease affects her nervous system and because she didn’t get diagnosed/treated quickly…she likely has it for life.” #RareDisease
‘Whatever happened to…?’ The shrinking circle of CRPS. Part 1.
(By Helen T) Let’s paint a picture. Not a literal one – a metaphorical one. You’re doing fairly well. Life...
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“No one wants to be home sick—it’s just not always possible to go out… But even if people with #chronicillness aren’t able to go out most of the time, it doesn’t mean they never want to… Continuing to be invited and included means so, so much.” #spoonie
23 Things Your Friend With Chronic Illness Really Means When They Say, 'I Can't Go'
The Mighty's chronic illness community shares what they really mean when they tell others, "I can't go."
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“The CDC, FDA, and DEA have severely underestimated the needs of #chronicpain patients and misjudged the consequences of these cuts. While #opioid misuse is a serious issue, penalizing legitimate pain #patients is not the solution.” @PainNewsNetwork #cpp
DEA Plans More Cuts in Opioid Supply, While Raising ADHD Stimulant Production — Pain News Network
By Pat Anson The U.S. Drug Enforcement Administration is planning more cuts in the supply of prescription opioids ...
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“It’s a day-to-day battle… a lot of the time it feels more like just surviving… Pain makes the most simplest tasks, like getting out of bed or getting dressed, difficult feats. You’re battling everything. All of the time.” #chronicillness #chronicpain
15 Powerful Truths About What It Means to Be a 'Pain Warrior'
The Mighty and US Pain Foundation communities share what it means to be a pain warrior.
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“If I only have a certain number of “spoons” per day, I don’t want to spend them hating myself or my body… You deserve to love yourself regardless of #chronicillness. I’m not going to wait for a miracle to love myself—& you shouldn’t either.” #chronicpain
6 Tips for How To Accept a Chronic Illness
So much about living with chronic illness is difficult. (Like, all of it.) But I personally think that the harde...
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“Be good to yourself and put #selfcare first on your priority list. Do only what your body tells you to do and find healthy ways to soothe yourself. [Gentle] Yoga, tai chi, meditating [may be] helpful. Rest!” When No One Seems to Understand #ChronicIllness
When You're No Longer Healthy, but No One Seems to Understand Your Illness
Patti Schmidt, MS gives advice for living in the "limbo" period of adjusting to a new diagnosis.
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“I’ve been able to recognise this [flare] as temporary… rather than the set in stone fact of failure my #criticalvoice insinuated. I’ve been able to find #compassion for how difficult it is… to recognise it’s understandable… human.” #chronicillness #cpp
The Power of Being Accepted | The ME/CFS Holistic Coach
Self-acceptance is a powerful tool against depression and much easier to find when you show yourself fully to anot...
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“The cause was beyond my control and the result is uncontrollable weight gain, #ExerciseIntolerance, profound #fatigue and an inability to participate in normal daily activities.” No My #ChronicIllness Couldn't Be Prevented #PEM #AdrenalInsufficiency #pwME
No, My Chronic Illness Couldn't Have Been Prevented With a 'Healthier' Lifestyle
A woman with adrenal insufficiency and growth hormone deficiency explains that her illness and weight gain are not her fault.
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