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“PROP is responsible for an enormous number of "pain refugees" longterm opioid users with serious, painful diseases/conditions. This group—dependent but not addicted—had their meds involuntarily tapered or taken away—they suffer constantly.” https://buff.ly/45KrCy9?utm_content=buffer1a742&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer #cpp #opioids
“I don’t have a “low pain threshold”… neither do others who suffer daily… When it’s possible physically, we do things…but we do it in such pain that if anyone else experienced it, they would demand pain relief at the closest ER.” https://buff.ly/5vcbGdC #ChronicPain
"In truth, every day is a fight, a constant battle, trying to keep that smile painted on our face. But often, the demands of #chronicillness supersede everything else, and this performance becomes difficult to sustain.” https://buff.ly/2d9jlWA @serenebutterfly #FND #chronicpain
“#BeKind to yourself! Start small and listen to your mind and body, don’t push things that aren’t ready to be pushed, or if you do push and your body shouts no! then step back a little and reformulate.” The Importance of Accepting Your #ChronicIllness https://buff.ly/jRYOGB3
“Life with one #disease is so hard. Living with many diseases is unbearable…#Autoimmune disease doesn’t just set one body function on fire. It sets the whole house on fire… Every day I open my eyes and my first thought is, ‘#PAIN’.” https://buff.ly/fgJaWJ4 @globetrotteri #AxSpa
“I smile through the pain…nausea…exhaustion…I have really bad days and those far outnumber the good. They can be absolutely awful… I’d give anything for a cure but since that’s not reality now—I play the hand I was dealt—it’s the best we can do.” https://buff.ly/47tLLcu #CRPS
“We are both wave and water, calm and storm… When we’re feeling stormy and agitated, it’s within us to transform it into a sea of calm. Sometimes that can be impossible and we need to learn how to surrender and ride upon the waves.” https://buff.ly/r6LSdYH @AChVoice #mindfulness
“There‘s not one moment I‘m not in pain. The #medication simply allows pain to be at a level where I don’t absolutely lose my mind… Sometimes my pain‘s so intense that [#opioids] don’t even touch it—anyone with severe #ChronicPain will tell you the same.” https://buff.ly/3tMRRH2
“#ChronicIllness bloggers are often a voice for people living with conditions… But they’re living with their own too. They often support other chronic illness #bloggers… When we don’t have the time or energy to… guilt can creep in.” https://buff.ly/PVXxAvs @DespitePainBlog
“When you see me out… you think this is what I am capable of doing on a daily basis… You don’t realize that some days I do not have enough strength to be here. You can’t see I’m praying I can make it. You also don’t see the rest of my day.” #disability
The Struggle You Don't Realize When You See Me Out and About
A woman explains what people don't know about her health when they see her out and about.
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“A person with #ChronicPain often feels the need to justify themselves to other people…[#cpp] are living a nightmare…yet the people who should believe them often don’t. They’re told the pain can’t be that bad…or that they’re just lazy.” https://buff.ly/48DM8SP @DespitePainBlog
“#ChronicIllness can change the entire framework of your life… It’s often a constant, grueling cycle of fighting against your own body, trying your best to function, getting knocked down, and picking yourself back up again.” #ChronicPain #Disability
Imagine What It's Like to Live My Life as a Chronically Ill Person
Mighty contributor Casey Burke shares what it's like to live as a chronically ill person.
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“With our #chronicillness we are enough. With limitations we are still enough. We have to do things differently and maybe we cannot have the same goals… but we can have #goals… and achievements. We are good enough inside, intrinsically, as a person.” https://buff.ly/7rXLAT9
“Imagine having your foot doused in gasoline and lit on fire. Then imagine someone started rubbing sand paper and salt on the raw limb. That is the type of pain I experience during a flare-up.” https://buff.ly/48aG6J2 #ChronicPain #CRPS #IPS #CPP
“I would love to follow my passion but some days being able to shower is an epic achievement in itself… I am regularly thwarted by #chronicpain and #fatigue due to #fibromyalgia… My pain’s just there—all the time.” No, we don’t all have the #same24hours
No, we don’t all have the same 24 hours in a day: On chronic pain and freelancing in an unreliable...
No, we don’t all have the same 24 hours in a day: On chronic pain and freelancing in an unreliable body ...
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“I’d much rather be at work. People look surprised when I tell them that, like I’m on some luxury vacation and they can’t understand why I would ‘choose reality’ over vacation. They have no idea.” Secrets of People Who Can't Work Because of #ChronicIllness https://buff.ly/3GJ8HJO
“If you think something is wrong but people are dismissing you, keep pushing… You know your body more than anyone else, including people with medical degrees. If you know that something is wrong… keep pushing.” @kmitchellauthor #chronicillness #spoonie
Do I Have a Chronic Illness? What You Should Know If You're a New Patient
In the age of COVID-19, there are a lot of people who were healthy before their infection and who now have a...
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“Payback—one of the symptoms that is hardest for people [who haven’t experienced it] to understand… In payback symptoms are intensified… I think it is hard for healthy people to fully grasp what it’s like.” #ChronicPain #CRPS #pwME #longcovid #fibro
What It Means to Experience 'Payback' With Chronic Fatigue Syndrome
Wanting people to understand her condition better, this writer explains what "payback" is.
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“The unpredictability of #ChronicPain often catches me off guard… There’s also those days where we simply can’t handle anything… It’s easy to feel frustration when #ChronicallyIll… Instead of berating ourselves…attend to the feelings with #kindness.” https://buff.ly/4k3LQuT
“When you live with #chronicillness—all the thoughts, emotions, un-screamed screams…fear…worry rattle around inside you… Not feeling heard is a painful experience…the irony is when we get stuck in these—it can make it almost more difficult to connect.”
How I Finally Found My Voice With Chronic Illness
A woman with chronic illness describes how expressing her feelings and finding her voice has helped her cope with ...
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“I was #anxious—not because I had #anxiety but because I had #pain… The depression he thought he found was in response to: “I don’t go out much.” That is my life—because of the pain… It is not acceptable when our medical records contain falsehoods.” #cpp
A Pained Life: Setting the Record Straight — Pain News Network
By Carol Levy, PNN Columnist Decades ago, my pain management doctor suggested that my family doctor write my codei...
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“So many people don’t know that this is my life. Weekly doctor visits and tests, being stuck with a needle so much my arms are black a blue… No matter what, just gotta smile through it… I’m happy just to finally have my diagnosis.” #chronicillness
20 Photos That Show the Reality of Chronic Illness
The Mighty community shares photos of what their reality with chronic illness looks like.
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“This constant struggle tears me apart… I make plans and to-do lists. But when I try, I can’t do them all. My body simply won’t function in a way to do everything. This is my life with #invisibleillness.” Coping with the #Stress of #ChronicIllness
Coping with the Stress of Living with Chronic Illness
Being diagnosed with a long-term health condition can be frightening and disorienting. However, you can take steps t...
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