“We don’t want to sound like we’re complaining… This is why most #chronicillness warriors aren’t vocal about their struggles… But please keep in mind that there’s a huge difference between feeling that way once or feeling that every day of your life.”
8 Things I Haven't Told My Family and Friends About Being Chronically Sick
A young woman living with chronic illness reveals what she's been longing to say to her family and friends about...
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“Just as others may be tired of hearing about my #ChronicIllness, I am sick of living it. I am bored of having to talk about it. In truth, I would much rather be talking about something, anything, else.” My #ChronicLife @serenebutterfly #ChronicPain
Why I Don’t Always Talk About My Chronic Life
Do you know that you talk about your illness a lot? I hear this accusation a lot, but one I can't entirely ...
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“The truth is I’m so sick of the relentless pain that I cry when you’re not looking. I wake up in the night writhing in pain while you’re sleeping. I hide my pain, I hide my #fatigue, I hide my guilt and frustration.” To Those Living Pain-Free #ChronicPain
To Everyone Who Lives Pain-Free, From a Girl With Chronic Pain
Joanna Dwyer writes to everyone who is pain-free and explains what she wants them to understand about chronic pain.
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“There is no cause-and-effect relationship between #opioid prescribing to #pain patients versus either hospitalization for opioid toxicity or mortality involving #opioids. This is true despite the fact that persistent false #CDC claims to the contrary.”
Everything the government thinks it knows about the opioid crisis is wrong
The U.S. public policy on opioids is based on mythology and it is time for the Department of Justice and the DEA to stop promoting it.
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“Know that when they complain…it’s because their pain level is probably through the roof. Most people (inc. myself) won’t complain about how tired we are or how much pain we’re in until it’s more than what our threshold is.” #chronicpain #chronicillness
5 Ways You Can Support Your Partner Living With Chronic Illness
Does your partner have a chronic illness? Here are five ways you can support them.
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“Little do they know that most days it hurts so much, I won’t even get up to get myself something to eat. Or that I couldn’t wash my hair for a week… Not even those closest to me truly understand the severity of my illnesses.” #chronicillness #chronicpain
Trying to find the light in the darkness.
The past few weeks have been awful. Since my birthday on January 9th I’ve felt nothing but pain. I feel so ...
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“Look for beauty. No matter how awful it is, there is still beauty… your cat purring, a sunset, time spent with those you love. No matter how bleak you feel, remember there is still beauty… You are so much stronger than you think.” #chronicillness
22 Things to Remember Next Time You Flare
Reminders for anyone experiencing a fibromyalgia flare.
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“I was #anxious—not because I had #anxiety but because I had #pain… The depression he thought he found was in response to: “I don’t go out much.” That is my life—because of the pain… It is not acceptable when our medical records contain falsehoods.” #cpp
A Pained Life: Setting the Record Straight — Pain News Network
By Carol Levy, PNN Columnist Decades ago, my pain management doctor suggested that my family doctor write my codei...
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“Being in pain 24/7 not only affects you physically, it also affects you emotionally and mentally… It’s hard to live with #ChronicPain, but it’s also hard to see someone you love in pain.” 7 Things We Should Know About Chronic Pain #Caregivers #Disability
7 Things We Should All Know About Chronic Pain
September is the month of awareness for chronic pain. Here are seven things we should all know about pain.
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“The DEA has no clue about proper medical practice and is completely ignorant of which #patients truly need what medications. #Physicians […] are the only ones trained to make those decisions. Not the DEA… pursuing false metrics.” #opioidhysteria #cpp
What the DEA does not understand or does not care about medication cessation decisions
The DEA, obsessed with reducing medication diversion, overlooks the harm to the U.S. people, focusing on flawed metr...
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“Think of the last time you got sick—did anyone ridicule you? Or sigh in exasperation that you were ill yet again? Those with invisible #disability—try to explain… Lost friendships from “flaking” too often can end up leaving some very lonely.” #spoonie
10 Privileges You May Not Realize You Have If You’re Able-Bodied
Think about the last time you got sick. Did anyone ridicule you for it? Did anyone sigh in exasperation that you were ill yet again?
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“I have flares that last two weeks and others that last upwards of three months… I am left with the “flare hangover” of severe #fatigue and #brainfog… Other times… hospital. I receive infusions/treatments in an effort to break the cycle.” #ChronicPain
15 Things I Wish Others Knew During a Pain Flare-Up
Caitlin Wren shares what she wishes others knew about her chronic pain during a flare-up.
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“Living with pain is not straight forward—every day is not the same. One day (or hour, even) we’re [mobile]…and the next we can hardly get out of bed. Sometimes we know exactly why it happens, and others we have no idea.”  @kmitchellauthor #chronicpain
What's Chronic Pain? What You Should Know If You Love Someone with It
If an estimated 50 million Americans live with chronic pain, and each one has just 1 person who cares about th...
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“You have no idea what it takes for me to just get out of bed in the morning let alone ride an hour from home… I sometimes pay the price for days after. I’m just trying to ‘live’, I’m not asking to be judged.” When I Do Something Fun Despite #ChronicPain
I Don't Owe You an Explanation When I Do Something Fun Despite My Chronic Pain
Why people with chronic pain conditions shouldn't feel judged when they have fun despite their pain.
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“One of the worst things about #anxiety and #chronicillness is anxiety can create new physical symptoms or intensify the symptoms of your disease. Symptoms never seem to end.” How to Break the Cycle of Chronic Illness and Anxiety #chronicallyill #spoonie
How to Break the Cycle of Chronic Illness and Anxiety
Katherine Ditchburn discusses how to manage your physical and mental health when your chronic illness and anxiety ar...
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“It can take years to get diagnosed. Often #chronicillness patients have to go through a plethora of doctors… Many of us have had to fight tooth & nail for treatment…it’s exhausting, isolating. It makes life—which is already stressful—that much more so.”
Chronic Illness Isn't a Reason to Feel Guilty
When people are diagnosed with chronic illnesses, guilt can be common – whether it's brought on by a doctor, f...
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“It is difficult enough to endure the worst of times at the hands of #chronicillness… So I don’t share; instead, I become quiet, my socials inactive as my time becomes preoccupied with surviving the flare.” I'm Not Faking Being Sick; I'm Faking Being Well
Why I’m Not Faking Being Sick; I’m Faking Being Well
"I'm Not Faking Being Sick; I'm Faking Being Well."
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“#Pain. Am I going to be able to rest? I look perfectly healthy but I’m in agony, so will I get a seat on the train, will people help me out, will I make it through?” Things That Stop People with #ChronicIllness From Leaving the House @AChVoice #spoonie
33 Things That Stop People with Chronic Illness From Leaving the House (Sans COVID-19)
People with chronic illness live a life in lockdown of sorts on a daily basis, with or without COVID-19 laws i...
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“I intentionally avoid taking a full shower on days when I have other commitments. Even with a chair, a shower requires considerable recovery time, so I do my best not to overlap…with appointments or other energy-draining activities.” #chronicillness
26 'Hacks' That Can Make Showering Easier If You Have a Chronic Illness
The Mighty community shares their "hacks" for showering on days when chronic illness makes it tough.
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“We never get to see people living with pain or #disability because—guess what? They can’t leave their houses. #PainFlare-ups can also be unpredictable. You might make plans and then have to say, ‘I’m sorry, but I can’t manage this today.’” #chronicillness
Tara Moss on the regular, ongoing agony of living with chronic pain
There is widespread misunderstanding around chronic pain, which can leave someone like author and TV presenter Tara ...
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“I feel like I’m constantly crushing your hopes that I might finally be feeling better. And that is how every conversation starts —with a storm of thoughts about the most negative, painful thing in my life.” How Are You? #LongCovid #chronicillness #spoonie
When the Question 'How Are You?' Is a Painful Reminder
A woman with a chronic illness shares why it's so hard when people ask, "How are you?"
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“#ChronicPain is difficult to treat…unfortunately, there are no magic solutions. But to tell #patients to learn to live with it, without giving them adequate help and support is unacceptable.” Is This The Best Advice From A Doctor?  @DespitePainBlog #cpp
"Learn to Live With the Pain" Is That Really the Best Advice From a Doctor?
Chronic pain is difficult to live with. We have to learn to live with the pain but we also need support, empathy and a treatment plan.
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“Is it fair to a #chronicallyill person who moves mountains just to function normally to have to battle everyone just to maintain that functionality? …I fight #MS every day, I shouldn’t have to fight for the drugs I need too.” #MultipleSclerosis #CPP
The First Rule of MS Club
"I fight multiple sclerosis every day—I shouldn’t have to fight for the treatment I need too."
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