“I don’t trust my sensations. Things that should be cold, burn… normal movements, shock at random times. A simple brush by translates into unbearable discomfort… Even loud noises… or a breeze could translate into burning pain.” #CPS #ChronicPain #CPP
Why Trusting My Senses Is Hard With Central Pain Syndrome
A woman describes how central pain syndrome (CPS) caused by thalamic strokes causes her body to misinterpret sensations and pain.
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“One of the hardest things about living with any form of illness is that most people in your life just don’t get it. They try to be nice but most of the time it can come across patronising: “Can’t you just push on?” @me_illness #chronicillness #chronicpain
Chronic Illness – Me, Myself and Chronic Illness Blog
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“The rug’s been pulled out from beneath you—so give yourself time to mourn… You may lose friends…[who] don’t “get it.” You may have to adjust…but you’re likely to gain new friends who don’t care if you’ve not been able to blow-dry your hair since 2007.”
When You're No Longer Healthy, but No One Seems to Understand Your Illness
Patti Schmidt, MS gives advice for living in the "limbo" period of adjusting to a new diagnosis.
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“When we were able-bodied and healthy, tiredness was probably the worst we had to contend with… #ChronicIllness comes with chronic restrictions… but to change a lifelong behaviour of pushing through is incredibly difficult.” @My_medmusings #ChronicPain
Why Do We Think We Can Do More Than We Are Capable Of? Why Don’t We Just Listen To Our Bodies?
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“But you were fine yesterday so why are you canceling today? Surely your medication will treat it… You’re too young to be that ill… You’re smiling so you can’t be in #pain.” Why Being Questioned About Our #InvisibleDisabilities Is So Harmful #Disability
Why Being Questioned About Our Invisible Disabilities Is So Harmful
Jessica Mary Logan explains why questioning and doubting people with invisible disabilities causes so much harm.
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“A person with #ChronicPain often feels the need to justify themselves to other people…[#cpp] are living a nightmare…yet the people who should believe them often don’t. They’re told the pain can’t be that bad…or that they’re just lazy.” @DespitePainBlog
There is More to Chronic Pain Than Just Pain
Chronic pain is a horrible condition. But there's so much more to chronic pain than just the pain as it affects so much in life.
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“Mind-numbing sharp, fierce #pain that keeps me from using my hands…crackling electric pain that feels as if it shatters my spine…sharp needles scraping inside my bones while being crushed…my finger muscles spasming… I struggle to hold a phone.” #cpp
What a Day of Pain Is Like for Me
A woman with multiple conditions that cause her pain takes us through a typical day.
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“The myth that doctors “overprescribing” prescription pain pills…led to the overdose crisis… Data from CDC and NSDUH reveal no correlation between the volume of painkiller prescriptions and non-medical use or addiction to prescription painkillers.” #cpp
Australian Study on Opioid Prescribing Is the Latest to Challenge the False Narrative about the...
It is easier to embrace a false narrative than to face the inconvenient truth.
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“If you have a loved one with #chronicillness, it can be tough to know what to say. Sometimes, even the most well-intentioned comment can actually be hurtful… believe us, listen to us…as we navigate the complicated and frustrating world of illness.”
12 Things People With Chronic Illness Wish Their Loved Ones Would Say More Often
The Mighty's chronic illness community shares 12 things they wish their loved ones would tell them more often.
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“Every #chronicillness and pain patient does not know, from day-to-day, how they are going to feel when they wake up and each day has to be taken as it comes. In many cases, they don’t know from minute to minute.” @apainprincess #chronicpain
This is What Chronic Pain Sufferers Want You to Know
Elated that this post was published on The Mighty: What to Know to Understand the Experience of Having Chronic Pai...
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“There are so many myths and misunderstandings that exist about #fibromyalgia but the more we tell our stories and spread awareness of what the illness is like, the more we’ll be able to raise awareness for fibromyalgia and support those who live with it.”
Let's Bust These 5 Myths About Fibromyalgia
Ashley Nestler, MSW, busts five common myths that surround fibromyalgia, and discovers the truths behind them.
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“Someone has a problem with you parking in a handicap designated spot when you have justified this with your doctor and the your state’s department of motor vehicles? Honestly that is their problem, not yours.” @CRPS_Warrior #Disability #ChronicPain
Should-ing Vs. Chronic Illness & Pain
Hello there and thank you for joining me for Mindful Monday. Last week I wrote Part I about The Dangers of S...
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“Every #chronicillness fighter has experienced the piercing awkwardness of sharing too much with the wrong person or at the wrong time… We may forget that our “normal” can sound alarming to other people.” 'How Are You?' With Chronic Illness #ChronicPain
Answering 'How Are You?' as a Person With Chronic Illness
Adira Bennett discusses how to answer the question "how are you?" as someone with chronic illness.
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The ever-inspiring @globetrotteri at My Several Worlds’ round-up of #ChronicIllness #Bloggers To Follow in 2024: @realCC @kmitchellauthor @chronicfilipina @sarahlynn358 @MichellesMemoir @apainprincess https://buff.ly/4cy8yI3 Thank you so much Carrie, so grateful ❥❥ #ChronicPain
“We aren’t looking for anyone to feel sorry for us… We aren’t faking or exaggerating our symptoms. We know we “look fine” on the outside, but if you could turn our inside out, you would see the true face of our condition.” #Fibromyalgia #ChronicPain
To the Person Who Thinks My Fibromyalgia Isn’t Real
Woman with fibromyalgia addresses people who believe it's not a real illness.
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“#ChronicPain is invisible and often misunderstood…[#cpp] are very good at hiding it… Most aren’t going to understand how hard it is to be in constant pain… but you can be supportive and believe people in pain—#kindness can go a long way.” https://buff.ly/3VshIjb @sarahlynn358
“I wish my loved ones would tell me: ‘You are enough.’ Because I often question whether I am ‘enough’ as a person that doesn’t function like everyone else around her.” 12 Things People With #ChronicIllness Wish Their Loved Ones Would Say #spoonie
12 Things People With Chronic Illness Wish Their Loved Ones Would Say More Often
The Mighty's chronic illness community shares 12 things they wish their loved ones would tell them more often.
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“Most people start the day with possibilities, and energy to do whatever they desire, especially young people… Every little thing I do as a person with #chronicillness(es) and #chronicpain requires energy (especially because #fatigue is a symptom).”
Self-Care Tips That Chronic Illness Patients Need | Health & Lifestyle
In this post, chronic illness patient and blogger Kate the (Almost) Great shares self-care tips for chronic illness patients specifically.
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“The pain is beyond words. No medicine could help.” “#MS—I paid for it the next day!” “Too much #EDS pain—nothing I can do but rest!” “This was day 4 of a #CRPS flare, in horrendous pain and sleep-deprived.” Photos Show What a #ChronicPain Flare Looks Like
18 Photos That Show What a Chronic Pain Flare Looks Like
People with chronic pain share photos of what their chronic pain flares look like because not all chronic pain looks the same.
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“Overdoing it. Walking too much. Doing too much work around the house. I want to pace all the time, but sometimes my brain thinks ‘Hey we can do this’ and my body is like ‘What the…!'” #PainFlare Triggers @AChVoice #chronicallyill #chronicpain
A Roundup of Biggest Pain Flare Triggers (from 40 People with Chronic Illness)
In this three part series we’ll be investigating pain flares: how it varies for each individual, what triggers t...
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“Living with #chronicpain and #fatigue… I learnt that I have to take advantage of those small moments. I have to intentionally see the beauty before me and let that feeling soak in like lotion on dry skin… even if it’s fleeting.” #chronicillness
What Helps Me Live in the Now With Chronic Illness
A woman who lives with chronic pain and fatigue shares how focusing on the present helps her deal with life with chronic illness.
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“Often with #chronicillness we’re forced to do nothing as our health limits us—particularly in a flare. What if we gave ourselves permission to do nothing? Sometimes #selfcare with illness is letting go of the guilt we feel when we’re unable to do things.”
30 Self-Care Ideas for People with Chronic Illness.
Prioritising self-care matters but it can be tough. Here are 30 self-care ideas for people with chronic illness (and everyone else)!
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“Canceling plans last minute and disappointing friends/family… I never know how I’m going to be from one day to the next but I always feel guilty when I simply can’t or don’t want to go.” You Don't Have to Apologize If You're #ChronicallyIll #ChronicPain
20 Things You Don't Have to Apologize for If You're Chronically Ill
The Mighty community shares what people with chronic illness don't need to feel guilty about.
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