“Disability affects EVERY ASPECT OF YOUR LIFE… #Disability means constantly trying to prove you’re enough! We should not ‘be given help’ out of a sense of charity. We deserve to be included in all aspects of life, just like everyone else.” https://buff.ly/HhzA5oK @globetrotteri
“Living with #chronicpain and #fatigue… I learnt that I have to take advantage of those small moments. I have to intentionally see the beauty before me and let that feeling soak in like lotion on dry skin… even if it’s fleeting.” #chronicillness
What Helps Me Live in the Now With Chronic Illness
A woman who lives with chronic pain and fatigue shares how focusing on the present helps her deal with life with chronic illness.
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“It is ironic that since I became unwell with two invisible illnesses I have almost become invisible myself. Slowly, bit by bit… It is almost as painful as suffering from the constant pain from #Fibromyalgia.” @Osufferer #invisibleillness #spoonie
Just not quite good enough……?
Throughout my life, I have never belonged and always felt like I am just not quite good enough. I got no pra...
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“#Fibromyalgia is a bit of a ghost. It’s unseen, misunderstood, difficult to treat, difficult to prove… this condition is real and for me it’s pretty terrible… My inability to do something that most do without a second thought—is immensely depressing.”
When I 'Play Favorites' With My Disabilities
Christina Irene explains why people with multiple chronic health conditions sometimes discuss or focus on one more than the others.
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“There are just too many variables when it comes to our chronic illnesses… and they just won’t get it unless they get it… Everyone is fighting their own battles but—more likely than not—the person asking doesn’t have a debilitating #chronicillness.” https://buff.ly/5LNxmJ3
“You have no idea what it takes for me to just get out of bed in the morning let alone ride an hour from home… I sometimes pay the price for days after. I’m just trying to ‘live’, I’m not asking to be judged.” #ChronicPain: I Don't Owe You an Explanation
I Don't Owe You an Explanation When I Do Something Fun Despite My Chronic Pain
Why people with chronic pain conditions shouldn't feel judged when they have fun despite their pain.
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“Living with #ChronicPain is not straight forward — every day is not the same. One day (or hour, even) we’re […] fine, and the next we can hardly get out of bed. Sometimes we know exactly why it happens, and others we have no idea.” @kmitchellauthor
What's Chronic Pain? What You Should Know If You Love Someone with It
If an estimated 50 million Americans live with chronic pain, and each one has just 1 person who cares about th...
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“In all my years as a doctor treating patients with #chronicillness, I never saw a patient who enjoyed feeling ill. I saw the opposite, patients who were once very active, desperately trying to find answers and treatment for their overwhelming symptoms.”
I'm a Doctor With Chronic Illness. Here Are 12 Things I Wish People Knew.
A doctor who has chronic illness and treats patients with chronic illnesses shares what she wishes others knew.
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“I wonder though if people who don't live with #chronicillness truly realise how much it impacts upon daily life? Do they realise that symptoms can be there 24/7… or that medication doesn't magically alleviate all our symptoms?” @throughfibrofog #spoonie
5 Daily Challenges When You Live with Chronic Illness - Through The Fibro Fog
There are many daily challenges when you live with chronic illness. Here are just five of the activities that we encounter often.
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“When someone tells you that your illness isn’t so bad, or recommends a “surefire” cure, challenge their assumption… “I wish I could be cured as easily as you imagine. Unfortunately, it doesn’t work like that for most of us.”” #ChronicIllness #ChronicPain
Communication and Chronic Illness
Communication about chronic illness matters. Learn how to recognize and respond to harmful communications.
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“Be good to yourself and put #selfcare first on your priority list. Do only what your body tells you to do and find healthy ways to soothe yourself. [Gentle] yoga, tai chi, meditating [may be] helpful. Rest!” When No One Seems to Understand #ChronicIllness https://buff.ly/L8p9PW8
“#ChronicPain is a thief… It steals time with my children, time with my friends…time to do things I enjoy. It not only decides every day what I am capable of… It steals from the days following if I manage to—it wreaks revenge—for days, sometimes weeks.”
Chronic Pain // How does it affect our lives and our bodies?
Pain This article has now become a work in progress and is constantly evolving I am writing about pain and wha...
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“It takes longer to get ready… I frequently have to take breaks. Sometimes I have to nap after a shower because it’s so painful and exhausting. It takes much more to even get up…because you’ve tossed and turned all night.” https://buff.ly/2NypO0e #ChronicPain #ChronicIllness
“With a #ChronicIllness, like #MS, it is very difficult to know where the boundaries are, as they shift, continually… So many elements need to be monitored so I can function optimally. Due to #fatigue and #pain, it can be difficult to assess my limits.”
More pain and fatigue, because I did not pace myself
Pacing is very important when you live with MS. Over the last week my illnesses punished me with more pain and fatigue, because I forgot this rule.
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“We have no idea if what we choose to do now will mean that we can’t move tomorrow… It's hard to fight something you can’t see or even predict.” Dealing With Unpredictability in Life With #ChronicPain #chronicallyill #disabilities
The Unpredictability of Daily Life With Chronic Pain
A woman with chronic illness and pain describes how difficult it is to predict what she'll be able to do day-to-day.
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“My medication isn’t the reason I am in pain, and because of my medication, I am able to have a life. We need to stop shaming people for taking medication because sometimes it’s necessary.” What Not To Say… https://buff.ly/T709QO5 @sarahlynn358 #chronicillness #chronicpain
“When you’re sick of being sick, you don’t need a pep talk. You just need someone to say, ‘I’m sorry things are so hard right now,’ or ‘It’s perfectly understandable you’re feeling this way.’ If you don’t have such a person—then be that person.” #spoonie
10 Strategies to Try When You’re Sick of Being Sick
After 15 years of chronic illness and writing a book titled "How to Be Sick," I still can feel sick of being sick.
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“I have a tendency to push myself way too hard… I will tell everyone I’m fine…push myself to do things I really shouldn’t…be bedridden a few days…then a lot of apologizing comes…then I start all over again… I feel like a broken record.” #chronicpain
9 Things People Don't Realize You're Doing Because Your Illness Makes You Feel Like a Burden
If you have a chronic illness, your actions tend to be misunderstood. That's why we asked our Mighty community w...
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“When people do not understand the state I’m in, it makes me feel even worse during a #flareup. So… I accept it and know that it’s temporary. It will pass… I allow myself to rest and retreat, and surround myself with comforting resources.” @AChVoice #cpp
I May Be Chronically Ill, But I'm Also Chronically Resilient
The 3Rs of ‘Resilience’: Regenerate when faced with setbacks, stay Robust on challenging days, and Radiate on the good days.
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“We’re not being anti-social, we’ve probably just run out of #spoons… Our able-bodied counterparts have an infinite number of spoons, a person with #disability does not. Every little action, movement or choice costs a spoon.” #chronicillness #pwME #pwLC
6 Things I Want People to Understand About Chronic Pain
What people should know about what it's like to live with chronic pain.
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“Prescription practices did not create the #opioidcrisis and are not sustaining it… Yet millions of #cpp have been force-tapered to ineffective doses and thousands are dying of medical collapse or suicide, while the DEA persecutes MDs for trying to help.”
Government data refute the notion that overprescribing caused the ‘opioid crisis’
The root of the opioid crisis is not pain treatment. It is instead a crisis of hopelessness driven by the conditions in which people live.
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“A “normal” person’s 10 is my 4, what was my 10 now 6… Living in constant #ChronicPain, you grow accustomed…hiding it so well people think it’s OK to give you looks and stares while you’re struggling… That can only be changed by vocalizing our pain.”
It's Time to Bust the Myth That You Can't Be Young and Have Chronic Pain
A young woman explains why people should stop assuming she's not old enough to have chronic pain.
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“The inconvenient truth of #ChronicPain is that chronic pain is unending… Pain patients have good days and bad days… but one thing stays constant: pain is always there… I do not remember what it feels like to have a pain-free day.” https://buff.ly/cKZLIJ0 @globetrotteri #cpp