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“There is no break. I’m always operating with some high level of #pain…I don’t get enough sleep/rest…which makes it worse and creates a cycle. And where I live…the weather can be horrible one day and send me into a flare for weeks.” #chronicillness #cpp
21 Things That Seem Obvious About Chronic Illness, but the General Public Misunderstands
The Mighty's chronic illness community shares truths about illness that seem obvious, but aren't.
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“A person with #ChronicPain often feels the need to justify themselves to other people…[#cpp] are living a nightmare…yet the people who should believe them often don’t. They’re told the pain can’t be that bad…or that they’re just lazy.” https://buff.ly/3beMxTL @DespitePainBlog
“Doctors don’t tell you that they don’t really understand what it means to be in pain all day every day—for the rest of your life (unless they personally deal with it)… They don’t tell you how isolating it is…that #stress can make it worse.” #ChronicPain
24 Things Doctors Don't Tell People About Chronic Pain
The Mighty community shares what doctors didn't tell them about living with chronic pain.
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“As a person with a #chronicillness, I have learned we tend to violate our own boundaries… I tend to spend time with others to the point of physical/emotional exhaustion and cause my #pain levels to get high and I tend to not ask for help.” @lylcsarah
Setting Boundaries When You're Chronically Ill https://www.lylcsarah.com/post/setting-boundaries-...
Boundaries may not be something you have thought much about but, setting boundaries when you have a chronic illnes...
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“When asked my #pain level on a scale of 1 to 10 I ask, “My scale or yours?” On my scale I can be a 4 today but on a doctor’s…it’s probably closer to an 8… My body is in pain all the time, I have to endure it and it changes my perceptions.” #ChronicPain
My Invisible Daily Struggles as a Person With Chronic Pain
Kimberly Beebe describes a day in her life with chronic pain and illness.
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“Having to constantly explain and advocate for yourself because people generally don’t understand… I’m in constant #chronicpain…suffer from chronic #fatigue…#brainfog…I can’t really function outside of 11am-3pm… It’s hard to live every day like this.”
6 People Share the Realities of Life with Invisible Illnesses
What is an invisible illness? How can you support a loved one living with such a condition? We asked those liv...
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“Most #chronicillness warriors aren’t vocal about their struggles… But please keep in mind that there is a huge difference between feeling that way once in a while or feeling like that every day of your life.” #invisibleillness #chronicpain #spoonies
8 Things I Haven't Told My Family and Friends About Being Chronically Sick
A young woman living with chronic illness reveals what she's been longing to say to her family and friends about...
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“I might say, "I'm in a lot of pain" but that barely touches the sides of how I'm really feeling… the debilitating #pain… the swirling #anxiety and deep fear that things will always be like this, the despair I feel about my life and my #chronicillness.” https://buff.ly/3zJ5qaA
“Why should you feel guilt for using the things you need to help you live? You didn’t ask for your body to just stop working… I never thought at this age I would have a body of someone decades older.” When Little Things Become Struggles #chronicillness
When the Little Things Become Big Struggles Because of Chronic Illness
Bev Burns discusses the everyday struggles she faces with fibromyalgia, and how many people are not supportive of her needs.
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“I was swiftly reminded that pushing myself this hard always carries a cost… it’s so difficult to work when your mental energy disappears and your head feels like mush… Rest is the best medicine. But rest isn’t always an option.” #BrainFog #Menieres
Pushing Through Brain Fog on Difficult Days | Mind over Meniere's
In the battle against brain fog, rest isn’t always an option. When you need to push through, these tactics can help you finish your work.
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“This is me without the “mask.” This is me sick, nauseated, dizzy, in an obscene amount of pain, and completely exhausted… This is the part of me I normally hide… This is exactly what I don’t want people to see.” #Sjogrens #chronicillness #chronicpain
The Parts of My Illness People Don't See Because I'm 'Faking It'
Joy Coleman shares a photo of her hiding her invisible illness and a photo of her not hiding it.
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“Being #chronicallyill can feel like a full-time job…partly because of how exhausting it is to manage… We use up energy continually having to weigh the pros and cons of each activity… “If I do this, then I can’t do that. If I do that… I can’t do this.”
5 Reasons Why Chronic Pain and Illness Are Energy Drains
The chronically ill spend a good part of most days contemplating this kind of thing: “If I do this, then I can’t do that.”
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“Some bad pain days turn into weeks or months which leave me #bedridden… My mind goes from #anxiety, to grief, to anger, to #depression, then finally…numbness. It’s when I go numb that is the worst. I feel nothing besides the #pain my body creates.” #cpp
When Pain Starts a War Between Your Body and Your Mind
A person with chronic illness shares how flare-ups affect their mental health, and how they keep going.
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“Living with #disability can transform the simplest everyday task into a challenging beast… Never force yourself to do more than your body can handle; the aftermath isn’t worth it…but a light push can have cumulative effects.” @AChVoice #ChronicPain
Tips & Tools to Help Regain Independence with a Disability or Chronic Illness
Here are my best tips and favourite tools to help regain independence with disability or chronic illness. Maximise your quality of life today.
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“It’s the #depression… That’s what makes asking for help so hard… Nobody judges us as harshly as we judge ourselves… You’re not weak—you don’t deserve to feel like this.” The Real Reason Asking for Help Is Hard… #MentalHealthMatters #ChronicPain
The Real Reason Asking for Help Is Hard When You Have Depression
A man living with depression discusses the reason why asking for help is hard when you live with a mental illness.
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“Know your own value and worth. Give over to #hope (even just a tiny bit) and let light shine through the cracks on the hardest days. Let yourselves trust that joy—big and small—can find you again.” The right words at the right time https://buff.ly/3R2pDOP @painintheBECK #spoonie
“What people like me need is awareness: so many chronic illnesses are currently poorly understood and treated, leaving those with them feeling isolated and similarly misunderstood.” When People Say Their Supplement Will ‘Cure’ Your #ChronicIllness #spoonie
Please Stop Telling Me Your Natural Supplement Will 'Cure' My Illness
Erika Hansen addresses those who say their natural supplement will cure her, when she also depends on Western medicine for treatment.
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“I’m sorry how often I tell you that I can’t make it; I’m sorry that I make a big deal out of your birthday then stay home; I’m sorry I can’t help you wash up; I’m sorry I have to kick you out when I’m too tired… I’m sorry that I’m sorry.” #chronicillness
5 Confessions Every Chronically Ill Person Wants You To Know
5 confessions every sick person wants to tell you but never will
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“Imagine having your foot doused in gasoline and lit on fire. Then imagine someone started rubbing sand paper and salt on the raw limb. That is the type of pain I experience during a flare-up.” #ChronicPain #RareDisease #CRPS #CPP
What I Wish I Had Known About Complex Regional Pain Syndrome Flare-Ups
Here are four things this writer wishes she had been told about chronic regional pain syndrome flare-ups after being diagnosed.
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“The biggest change in my life that followed my #fibromyalgia diagnosis was leaving my career because I just physically could not keep up any longer… I’ve never felt more conflicted about making a decision.” @annakatarinaz #chronicpain #chronicillness
Why It’s Okay Not To Work When You Live with Chronic Illness
Having an illness like fibromyalgia is not a reflection of your character. No one works harder than someone with ...
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“When you find your body failing you and you lose the physical capacity to do the things that make you you, your sense of who you are is shaken to its core.” How #ChronicIllness Can Affect Your Self-Esteem #ChronicPain #Disability
How Chronic Illness Can Drastically Affect Your Self-Esteem
Megan Klenke explains how battling chronic illness affects her self-esteem.
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“If you're struggling, you deserve to make #selfcare a priority… Quiet the voice telling you to do more and be more, and today, whatever you do, let it be enough…be gentle with yourself. Acknowledge that you're doing the best you can to cope and survive.” #chronicpain #spoonie
“You are fighting a hard battle every single day… Life with #chronicillness is anything but easy. And truth be told…you probably don’t voice even a quarter of the pain you’re actually feeling… I see you… I also see your #courage.” #ChronicPain
To the Person Feeling Guilty for Venting About Their Illness
A message for anyone who feels bad about venting about their illness.
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