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“I have days that are manageable but not close to pain-free. This makes it impossible to rate my pain… I have no 1 on my scale… life exists in a constant state of pain. My body is constantly hurting. When asked to describe it… I cannot.” #ChronicPain
When You Live in a Constant State of Pain
A woman describes what her life with pain feels like, as someone who is in a constant state of pain.
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“Chronic pain and illness is a full-time job only without so much as coffee break, much less an evening off.” Why It Is So Vital To Do Something You Love When You Live With #ChronicPain & Illness @apainprincess #NERVEmber #ChronicallyIll
Why it's So Vital to Do What You Love When You Have Chronic Pain
When you live in pain you already have to deal with so much disappointment and heartache, doing what you love ...
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“Being sick is like a revolving door of intensity. On some days, the catastrophic #pain trumps the way you feel… On others, you can feel perpetually pulverized by the way you’re trapped in a body that continuously fails.” #NERVEmber #ChronicIllness
The Messy Intersection of Chronic Pain and Mental Health
When you live with chronic pain, things can get messy when your mental health is affected.
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“I wake up in pain and I go to sleep in pain. I cannot explain the kind of toll this takes on you mentally, physically, emotionally… Unless you live in #chronicpain or with #chronicillness, you cannot possibly imagine it.” #NERVEmber #FreezingFire #CPP
10 Things I’ve Learned About Living With Chronic Pain
You get to feel however you want and you don’t have to explain why you are having a bad day. You also do...
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“People with #ChronicPain learn to function while in enough pain to send a person to the ER… They learn to act relatively normal because it makes most uncomfortable to see someone in pain… that day they were stuck in bed, in tears from intolerable pain.”
10 Myths About Chronic Pain That Make It Even Harder to Live With
These are 10 myths about chronic pain that many people believe, but can make life harder for those living with chronic pain.
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“It’s easy to start comparing yourself to others but it’s so important we try not to… and don’t feel guilty if you have to take a week off… #chronicpain is not your fault, and you are only hurting yourself when you do too much.” @sarahlynn358 #spoonie
How To Blog With Pain
If You Liked This Post Please Subscribe For Weekly Updates 🙂 Blogging when you live with pain is more difficult...
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“I miss feeling productive. I miss feeling spontaneous…I miss not being exhausted constantly. I miss feeling like I had a future… I’m trying hard to find my identity again. I have lost so much…after I worked so hard to become who I was.” #chronicillness
When Chronic Pain Took Away My Identity
A woman writes about how she is trying to find her identity again after chronic pain entered her life.
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“Nobody knows what it takes for someone to get out of bed in the morning and function… Nobody fakes being unwell or #disabled… Be kind. Don’t be so quick to judge.” We Don’t Fake Being Sick, We Fake Being Well @OSufferer #NERVEmber #ChronicIllness
We don’t fake being sick we fake being well
The person you see on the left is the image you see when I’m in public. The person on the right is what ...
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“When you’re sick, people don’t always like to hear that it is not better yet and they especially don’t like to hear that it won’t get better…#CRPS is an incurable #RareDisease. Seeing the disappointment… makes me want to pretend everything is alright.”
Why I Feel Like I Have to Hide My Chronic Pain From Other People
A woman with complex regional pain syndrome explains why she feels like she has to hide her pain from most other people.
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“What I wish people knew about #MECFS… that M.E/CFS is so much more than being tired! There is still work to be done to challenge this negative perception, which can leave people in the community feeling misunderstood and side-lined.” @me_illness #pwME
Living with… M.E/CFS
We have officially made it to the final instalment of the ‘Living with…’ series. Or so I thought… I have...
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“#ChronicIllness can make you feel worthless… Many of us lived fast-paced lives before…running around, full of life…to struggling to get out of bed… It may make you feel upset with your appearance but nobody can take your inner beauty—you are worthy.”
10 Reasons We Are All Worthy, Even If Chronic Illness Makes Us Feel Like We're Not
Sophie Ward explains why everyone is worthy and has a purpose in life, even if chronic illness makes them feel like they don't.
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"Most of the important things in the world have been accomplished by people who have kept on trying wher there seemed to be no hope at all.” ~ Dale Carnegie
#NERVEmber #FreezingFire #ChronicPain #RareDiseases #NeuropathicPain #NervePain #CRPSAwarenessMonth
“My “good hours” are spent working and my “bad hours” (rest of the day) are spent recovering… It’s a massive battle inside me all the time—like I need to prove to others that I’m not “lazy” by not actually taking the rest I need.” https://buff.ly/3C20XjW #chronicillness #spoonie
“It’s fire. And it’s ice…it’s crushing. Your bones are in a vice…knives tearing at your flesh… A touch sends you into a pain spiral. A light gesture causes searing pain. Whether it’s a person…breeze or your clothing—it’s like being hit by a bus.” #CRPS
What It Feels Like to Dance With the CRPS Monster
People ask her what her symptoms feel like, and this is how she explains her condition to others.
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“We get a LOT of unsolicited advice… If you mean well, just know that we’re probably good without your advice. If you don’t… or you don’t know the person you’re talking to… just keep it to yourself.” @kmitchellauthor #NERVEmber #chronicillness
So Someone Healthy Has Given You Health Advice | Health Lifestyle
In this post, I'm sharing how to deal with unsolicited health advice from people who don't know you personally and from people who do.
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“With #fibromyalgia, I have basic high-level pain with #fibrofog that makes my head feel cloudy… I can’t seem to grasp any thoughts no matter how vital… Often I have crackling electric pain that feels as if it shatters my spine.” #NERVEmber #chronicpain
What a Day of Pain Is Like for Me
A woman with multiple conditions that cause her pain takes us through a typical day.
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“When I was first diagnosed with IIH… Some days, I felt determined to overcome any obstacle… Other days, I was overwhelmed by fear and uncertainty… What helped me cope was processing these feelings, rather than trying to push them away.” #chronicillness
How to Navigate the Emotional Maze of Chronic Illness
Coping with the psychological impact of chronic illness is a complex journey. This post provides a compassionate gui...
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“#ChronicPain patients just want to continue to function… And sometimes that requires medication… Everybody feels pain differently and what works for some may not work for all. #PainPatients just want quality of life!” #NERVEmber #FreezingFire #cpp
17 Things People With Chronic Pain Want You to Learn During Pain Awareness Month
People with chronic pain share things they wish others would learn during Pain Awareness Month.
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“With #chronicillness it is extremely difficult to know how one will feel. It is no longer a day to day struggle but an hour to hour battle… You can be having a ‘good’ day… suddenly the #chronicpain flares and leaves you vomiting, doubled over in pain.”
Living in fear…of the pain.
When you are dealing with chronic illness it is extremely difficult to know how one will be feeling. It is n...
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“It never stops. You wake, it hurts. You rest, it hurts. You move, it hurts… You never get used to chronic pain.” To the Person Who Thinks #ChronicPain 'Can't Be That Bad' #NERVEmber #ChronicIllness #IntractablePain
To the Person Who Thinks Chronic Pain 'Can't Be That Bad'
A letter to people who don't understand chronic pain and think it's "not that bad."
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“There is a reason why you only see me on good days; because I only let you see me on such days. My worst days instead spent behind closed doors… where no one can see my tears when the #pain is more than I can bear.” @serenebutterfly #FND #chronicillness
Brave In The Face of Chronic Illness? –
We are often told that we are brave for living with a chronic illness. But often we not feel brave in the face of chronic illness?
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“Be good to yourself and put #selfcare first on your priority list. Do only what your body tells you to do and find healthy ways to soothe yourself. [Gentle] Yoga, tai chi, meditating [may be] helpful. Rest!” When No One Seems to Understand #ChronicIllness
When You're No Longer Healthy, but No One Seems to Understand Your Illness
Patti Schmidt, MS gives advice for living in the "limbo" period of adjusting to a new diagnosis.
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“People with #chronicillness don’t have the privilege of knowing how they will feel… Please don’t stop asking—every invitation warms my heart & breaks through the loneliness & isolation… I may not always be able to go but will love that you asked.”
RSVP: No. When my diagnosis makes me a bad friend
Believe it or not; sometimes I forget I am sick. I forget that my body doesn’t allow me to do certain ...
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